John F Crowley Chasing Miracles pompe disease extraordinary measures Chasing Miracles About the Crowleys extraordinary measures Meet the Crowleys Extraordinary Measures - The Movie Stay connected with the Crowleys Crowley Charitable Links Contact the Crowleys Chasing Miracles John F Crowley pompe disease Sharing our Strength, Hope & Joy John, Aileen and their three children, John Jr., Megan and Patrick Crowley featured above have been chasing miracles of modern science. In 1998, Megan and Patrick were both diagnosed with a genetic disease. This often fatal neuromuscular disorder known as Pompe disease was so rare that no company had yet developed a medicine to combat it. John Crowley raised more than $100 million dollars to launch biotechnology companies to develop the cure. CBS Films is making a major motion picture, Extraordinary Measures, about John and his family starring Harrison Ford, Brendan Fraser and Keri Russell. The film hit theaters on January 22, 2010. Home About Meet the Crowleys Extraordinary Measures Stay Connected Charitable Links Contact Us Chasing Miracles - The Book FOLLOW US: The Cure - The Book Books about the Crowleys Contact the Crowleys Chasing Miracles