Meet the Crowleys, the Princeton, N.J. family who inspired the movie “Extraordinary Measures.”
Visit Costco Wholesale in Bridgewater at 1 p.m. Saturday, Feb. 13 as John Crowley, who helped develop a
life-saving treatment for his children, signs his new memoir, “Chasing Miracles: The Crowley Family Journey
of Strength, Hope, and Joy.” For Costco Members Only. Costco Wholesale is at 325
Promenade Boulevard in Bridgewater. For more information, call 732-584-1003.
The Crowley Family Journey of Strength, Hope, and Joy
by John Crowley
Foreword by Aileen Crowley
A personal memoir from the family that inspired the film Extraordinary Measures, starring Brendan
Fraser, Harrison Ford, and Keri Russell - a father's story of his determination to save the lives of his
two youngest children born with a rare genetic disorder and finding hope, strength, and joy despite
When John and Aileen Crowley learned that their two youngest children had a rare and little
understood genetic disorder, they didn't hope for miracles: they made them happen.
In 1998, 15-month old Megan and 4-month old Patrick were diagnosed with Pompe disease, a rare
and fatal neuromuscular disorder that affects only a few thousand children worldwide, usually
leaving them with little to no muscle function, enlarged hearts, and severe difficulty breathing. The
Crowleys were told to take their children home and "enjoy their short time together...there is nothing
that can be done."
From his blue-collar upbringing in New Jersey, John Crowley, a recent Harvard MBA graduate
working at Bristol-Myers Squibb, was just beginning to taste success in corporate America. Now he
was absolutely determined to find a treatment to save the children's lives. Frustrated with the pace of Pompe research, at the age of
31 Crowley walked away from the corporate world to help co-found a start-up biotech company, focused exclusively on developing a
treatment for Pompe.
Written by John Crowley with Ken Kurson (co-writer of Leadership with Rudy Giuliani), Chasing Miracles is the story of how the
Crowleys set out to do "whatever it takes" against phenomenal odds to help Megan and Patrick first to survive, and then to thrive -
and to keep their family, including oldest son John, Jr. together and their marriage strong. A truly uplifting and inspiring book that
captures this remarkable family's everyday life, this is a memoir about life and love; about coping with adversity; and, most
importantly, about what it means to never, never quit.
Meet the Crowleys
Meet the Crowleys
Books about the Crowleys